National Data Opt Out

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Data in primary care is of particular value because it encompasses so many conditions, some of which are treated primarily (or entirely) in primary care settings. This data can be used to more accurately predict the demand for future care provision.The data will consist of symptoms, observations, diagnoses, results, allergies, referrals, immunisations, appointments, sexual health and mental health, as well as the patient’s sex, ethnicity, and the staff who have treated them.

The data that will not be collected includes names, addresses, written notes from doctors, images, any information over 10 years old (old medicines or appointment data), or any data that GPs cannot ordinarily share by law – including IVF treatment or gender reassignment data.


We recommend you read the information available on the NHS Digital  & SE London websites (links below) before making your decision.

https://www.nhs.uk/your-nhs-data-matters/

https://selondonccg.nhs.uk/news/general-practice-data-for-planning-and-research/

Your Data Matters – British Sign Language version – YouTube

Your Data Matters

Your Data Matters Guidance for Carers

Your Data Matters Guidance for Young people